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Wait a day …

Ride it out.

Try it out.

Breathe.

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I do.

I do worry about addiction – and as effective as Alprazalam has been (and, literally, I think, a life saver – I want done!)

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So, when I talked to my doctor about the increase in my anxiety, I already kinda knew what he was going to say.  I also knew what I was going to say back.

NO!

No more!

I know the day of the week not from a calendar, but, from my medicine box!

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It’s beyond ridiculous.  And I want to FEEL!  I want to be me.

I want to be the best me.

So, he suggested a new pill.

“Does this mean I can stop taking Alprazalam??”

“No, you’d take this in tandem.”

“But, if it WORKS then …”

“Then you can use Alprazalam for spells.  This med doesn’t work that way.”

“Oh.”

😦

I researched.

Probably shouldn’t have.  Because 1/2 of the people taking my new meds had an AWFUL time.  I had a consultation with my pharmacist and felt um, sorta confident?

Placebo effect.  I had to be SURE it would work.

To be able to walk the length of Walmart without leaving my cart.

To be able to drive without losing sensation in my fingers and mind!

Let’s make all of this make sense with some of what my pharmacist told me.

Turns out, he has the same heart condition that I do.

True story.

(That’s how long the ‘consultation’ was – I only had one question, he had a hundred answers, which also kinda explains why my pick up takes so long lol)

Our hearts, already in fight or flight mode, due to electrical misfires, need the brain to tell it to chill out.

Any (insert Star Wars here) ‘disturbance in the force’ be it a past experience or recent one – aggravates our medical condition and there you have a medical anxiety.

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So, taking pills for the actual heart condition and pills for the anxiety has taken a toll.

It’s been over 6 years.

The body builds up a tolerance.

But I didn’t.

I don’t WANT to be THAT girl.

If I can get through the rough patch of this NON narcotic solution, I can maybe wean off of the benzos, which IS my goal.

I’ll never be off the Digoxen or the Metopropolol – and that’s fine!  They are literally a life saver.  I know I need them.

But, what if … Just what if – I don’t need Alprazalam anymore?!?!

BIG GRIN!!!!!!!!!!!!

I can’t wait for the day that I can walk into any situation and feel at ease – or lay my head down and not wake up in the middle of the night to a ‘spell’.

But – I feel it coming.  I hope.

And I’m in.

I’ll ride this out.

Let’s try it?  No?

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MY Truth about Anxiety

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“But, I don’t want to be ‘that’ girl.”

“Amanda, anxiety is a medical condition – you have nothing to be ashamed of.”

This was a conversation I’ve had over and over with my doctor.

When did it start?  Approximately 2008 … I had ‘spells’ I couldn’t explain.  Couldn’t lay down – couldn’t breathe – felt out of body, but so very aware of every sensation, as negative as they were.  I was scared, I wanted to sleep – I wanted it over!  But couldn’t and had to wait it out.

To be fair – I was soon diagnosed with Inappropriate Sinus Tachycardia, (Basically, I have an electrical misfire when it comes to my heart – so that makes a very real, and very scary condition hard to distinguish from an anxiety attack)  but also with COPD after a random chest X-ray after a rapid heart beat sent me to the ER.  They caught my lungs on that shot and shared that with my doctor.

My doctor shared that with me and I cried and cried.

I was that kid that every time I caught a cold, I’d end up with bronchitis.  That, or walking pneumonia.

My lungs were enlarged.

OK.  So, we deal with that.

I was put on Digoxin and Metoprolol.

That seemed to help for a while – but then I started having what I call ‘spells’.

Not just heart palpitations due to my heart condition – but debilitating full on attacks at random times.

Anxiety/panic attacks don’t come for me when I’m stressing out – they come when I least expect them and yes, I know the difference between ‘them’ and a heart episode.

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I tried breathing patterns, I tried cooling my pulse points under running water – usually, just finding someone to sit with who wouldn’t ask me how I was would work.   The spells would pass.

My doctor added Alprazalam to my regime.

THAT helped.  Until it didn’t.

I would wake up in the middle of the night, certain I was having a heart attack.  Chest pain, back pain, rapid heartbeat, out of body sensation, clammy palms, jaw pain, left arm pain – total and complete feeling of helplessness and impending doom.

It got to the point I couldn’t ‘walk it off’ (literally, and that’s something they say you should try.). I was too dizzy.  I also couldn’t be horizontal, it made it worse.  With blurred vision and terrified, I’d hit my knees and lean over either my couch or bed (if I was at home) and this agnostic prayed.  And prayed HARD!

Usually these spells happen when they really shouldn’t.  Watching a movie – sleeping – or just working and feeling happy.

Bonkers timing.

No stress I was aware of.

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Fast forward again.

For eight years I’ve been taking 2 Metoprolol, 1 Digoxin and two 1/2’s of Alprazalam per day.

I’ve learned to ‘deal’ with the bad times.

Past month, I’ve been getting goosebumps only on one area of my body.  My left thigh.  That concerned me.  (Mostly because my house is in the 80’s and no, I hadn’t been watching a horror movie at the time.)

Also, my anxiety has upped, big time.

Yes, mostly it’s random.  But, I do have triggers.  Raised voices,  my dog barking,  a car too close behind me …

Then, a new symptom.  I can feel completely fine at work or at home, but trying to run an errand?  I suddenly feel complete and utter intestinal distress.   An urgency that shouldn’t be there.  Because my tummy was fine when I left.

I also can only be in ‘public’ for a short amount of time.  I’ve left a cart at a grocery store quite a few times – unable to find my footing and having to abandon it.

Crowds?  Oh goodness no.  I can’t do crowds.

Add to that driving.  Now, this is something note worthy because, NOW, I’m putting OTHERS in danger.  I accidentally tried to change lanes one day and someone was in my blind spot – they honked.  Since then, I’m terrified to change lanes.  I also feel a LOT of pressure when I’m doing the speed limit and someone is behind me wanting to go faster.

Worst experience was trying to take my fiancé at the time to Vegas – the closer we got to ‘big’ traffic, the more symptoms.  I literally couldn’t feel my hands, couldn’t breathe.  I couldn’t see – I had absolutely NO control over my body or what it was doing!!  The first exit we found with a phone, we called a taxi for him to finish the trip for an absurd amount of cash.

Today – I shared all of this with my doctor.

Today – I received an additional prescription for buspirone (BuSpar) for generalized anxiety, OCD and panic.

It doesn’t work for everyone.  I’m REALLY hoping I’m a good candidate!   Mostly because it’s non-narcotic.  I want OFF of Alprazalam.

I see my doctor again in a month and if it DOES work for me, I can be weaned off of Alprazalam – and I’m SO grateful!

Bottom line – Anxiety and panic attacks are no joke.

My son has spent hours with me telling me “You’re not in danger”  and telling me to focus on things that ground me when I can’t even move.

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Anxiety is crafty and unpredictable and terrifying.

But – If you’re going through this for the first time?  You WILL be ok!

It feels like you’re going to die.  It does.  I don’t think people who don’t have it understand that.

I also don’t think people understand how legitimate the experience is.

Things to NOT tell a person going through it (from my experience, not a medical book.)

“You know it’s all in your head, you’re fine!”

“Just breathe.”  (Although, there ARE some great breathing techniques that DO help.)

“You’re making this happen.”

No.

No.

No!

If you wake up with a pounding heart and can’t feel your phalanges and can’t believe how helpless you feel – YOU try telling yourself to ‘just breathe’ – lol.

And, if you can’t relate.  I’m SO glad.  I AM SO GLAD.  Because it’s fucking awful.

I’ll give you an example that maybe you CAN relate to.

Ever have to be at work and you have an excruciating  toothache or earache that renders you unable to sleep?   Yeah.

It’s sort of like that.  ALL you want to do is have relief and relax, but your body DOES NOT cooperate!!!!!!!

You have NO control.

So – I’ll try this new medicine and let you know, let’s see how my  experience goes.  I already made the mistake of ‘googling’ and reading user reviews.

No wonder I’m a bundle of nerves. LOL!

BUT! But.

Because, I’m tired.  And I’m tired of going through this … I’m willing to try anything.  I’ll be a Guinea Pig.

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Musings from the Laundromat – staying up late & sharing too much edition.

Didn’t see my laundry lady last week as I was house sitting – but it’s odd because I did see her in a shop just before that weekend.

She came over and chatted and her parting words were.  “See you on Sunday!”

I proceeded to fret throughout that weekend because I hadn’t remembered to tell her that she wouldn’t.

Silly isn’t it?  But I felt like I’d missed an appointment and hadn’t bothered to officially cancel it.

Here I am this week, so all is righted.

She HAD noticed however. “Yeah, I made your coffee and didn’t see you.”  She said.

😦

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Stayed up super late Friday – I think, just because I could you know?

I get so excited about Friday, even though I don’t ever GO anywhere.

Played an online game I like for hours – did very well so proceeded to go into random rooms and gift those less fortunate with most of my spoils.

Wrote a couple of posts here that I’ve since deleted – too raw.  Too much info.  (I’m not kidding when I say my censor button is missing.)

Then I watched a really weird movie on Netflix, then another and another … before I knew it it was early morning!  I felt so naughty.

Then I remembered I’m 46 years old and no one actually cares if I stay up all night anymore.  Well, my BODY cared.  I slept in until 11 a.m. Feeling like I hadn’t slept at all.

Needless to say, the house didn’t clean itself yesterday, and it won’t today either, but I shall.  I just can’t DO all nighters anymore!  I’m getting too old for that crap.

Good thing I was home and not at some bonkers club.  Sorry, I’m chortling right now having read back that last sentence.  I don’t ‘outside’ and I don’t ‘people’ so the odds of that club scenario borders on the absurd.

My crowd consists of the ‘Snow Birds’ that I see every year at this time at the laundromat, my Glaucoma Man (who wasn’t there today) and the laundry lady.

My happy comes in the form of my son and dog and home.  And of course my friends and family who I REALLY need to see face to face more.

I dream (literally) of being amongst people and finding love.  Had the oddest dream last night of another faceless soul who loved me.

They’ll remain there – in my sleep.  Because my heart is still mending and besides, what if they want me to actually leave my house?!!  God forbid.

 

 

Musings from the Laundromat: Oye Como Va – Mi Ritmo edition

Listen to how my rhythm goes …

Woke up at 8 and while brushing my teeth ‘Oye como va’ popped into my head.  Santana was brushing his teeth with me.

Out of nowhere – songs pop into my head.  I hear a song and remember a time, a place, a movie.  Mostly movies.  I can’t hear ‘Running on empty’ without thinking of Forrest Gump or ‘American Girl’ without thinking of Silence of the Lambs.

If all went as planned – today I would be waking up a wife.  Yesterday was to be my wedding day.  Instead, I woke knowing I have 4 days left living with the man who was to be my groom.

Life is like that.

That old joke:

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My fingers hurt – I’ve successfully bitten off every single nail.

My leg hurts – I pulled a hamstring  over a week ago and still so tender.  Gawd only knows how, I think we know by now I do NOT do exertion.

My heart hurts …

But life goes on.  Limping into action this morning I kept repeating ‘Oye como va’ in my head until I reached the laundromat.

Glaucoma man was here.  I think I startled him with a hug.  In fact I know I did because his reaction? “Oh!?”  Poor guy.  Sorry glaucoma man, but I hadn’t seen you and a familiar, albeit, a tad annoying face was welcome today.  OK, his face isn’t annoying, but his constant chatter while I try to type is.  Laundry lady’s patience wears thin with him too.  I try to give him all my attention though.

Just learned so much more about laundry lady by the way … about the grandchildren she never sees, about the ex-husband who drew up divorce papers for one dollar in prison.  About her son.

For an introvert, I sure chat a lot with the random people in my life.

That’s how my rhythm goes.

 

While we’re in a ‘Time Out’ – More musings.

Literally pacing.

Refuse to go online in case there are spoilers regarding the game.

Then I had the brilliant thought of, “We could still watch football!”  Only to remember, the Packers/Bears scores would be shown atop whatever game is on.  *sigh*

SO! We’re having an intermission.  Until 1, when everyone else knows the outcome of the game, and we have to watch it on Game Pass when the game ends.

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I put a pizza in the oven, you could have a piece if you were here.

An hour into the 3 FREAKING HOUR ‘intermission’ – I decided to take some photos.  This was after more pacing and cleaning the toilet.

Here you go – my ‘No Packers Game Must Fill Time Photos’

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Such a let down this morning was – like ‘Wishful Makeuping’ remember that from Pretty in Pink?

Getting all excited about something – and then it doesn’t turn out the way you want.

Which, let’s face it.  IS usually the case.  Life is full of ‘Wishful Makeuping’ and then something else happens instead.  (Although, Blaine DID show up for that date – much to the horror of Duckie.)

Got to always be prepared to either, A) Sit in your makeup and outfit you picked out or B) Wash your face and roll with it.

I rolled with it.  We found a solution, albeit, not on our hoped for timeline, but, photos were taken, art is being drawn right this second out in the sunshine by my honey – and life is good.

Sometimes what we want is trumped by what we need. And when that happens, it’s pretty amazing.

We can wait.